Advertising

low-fructose diet for 1 year

  • jlrohler
  • jlrohler's Avatar Topic Author
  • Offline
  • Fresh Boarder
  • Fresh Boarder
More
7 years 4 months ago #204 by jlrohler
low-fructose diet for 1 year was created by jlrohler
Hi all; I saw the post on FB from this site about how quiet the discussion boards have been and they were right!! I've been on a gluten-free diet for 4 years and a low-frutose diet for almost a year now. I'm happy to offer insights, tips, or answer questions for anyone who may have some.
A little about myself - I've dealt with stomach issues my entire life; I am a 39 year old woman who lives on the east coast in the US. After the birth of my third child, my stomach issues were getting quite embarassing. They consisted of extraordinarily loud noises (at inappropriate times!), immensely painful bloating, and horrible gas. A doctor I had at that time laughed my complaints off, implying they were due to me aging. About 20 years ago, I was diagnosed with an undetermined autoimmune disorder - I have consistently low white blood & platelet counts and an early onset of arthritis. My symptoms are manageable though through a healthy diet and lifestyle and I do not have to take medications for my counts or arthritis.
Ok - back to my stomach ailments - about 4 years ago I reached my wits end with dealing with my stomach pains and put myself on a gluten free diet after reading & learning about it on the internet. I tested negative for celiac's disease (unfortunately I had already put myself on the diet before being tested) but my new doctor agreed with me - I was the only one in my family demonstrating these issues; the diet made me feel better, so why not stay on it? Within days of beginning the gluten free diet I felt WONDERFUL!! After two weeks on the GF diet, I tested myself with a slice of regular pizza and all my symptoms came rushing back - not only the painful bloating and gas, but my whole demeanor changed - I felt so weighed down and slugish as though my mind was moving through a fog. That feeling alone sealed my determination to remain gluten free. My dietary bible became "1,000 Gluten Free Recipes" by Carol Fenster. I highly recommend this book!! After 3 years on the gluten free diet, I was diagnosed with Gastroparesis and SIBO (small intestines bacterial overgrowth). The diagnosis was confirmed by a breath test and stomach emptying test. Blood tests indicated I was extremely low in vitamin b12 (the bacteria in my stomach was robbing my body of this nutrient). I had been experiencing months of reflux, uncontrollable loose bowels & gas, and a very sudden weight loss. I am 5'5" and dropped to 116lbs. I couldn't eat and had to sleep sitting up to help the burning in my chest. I was presented with different medications I could elect to take to help stimulate the movement of food through my stomach, but the medications could have had very serious and permanent side effects including hearing loss. I tried one medication and experienced a horrible allergic reaction - my stomach blew up - I looked at least 6 months pregnant! There are actually quite a few medications I have been found to have allergies to. After doing more research on the internet, I found the book, "IBS - Free at Last!" by Patsy Catsos. I put myself on her two week elimination diet and have remained on my own version of this diet for the last year. I know what foods do and do not bother me by reintroducing them according to instructions in the book. I am currently in remission and am managing my gastroparesis with the diet; I take sublinquial b12 and Ltyrosine daily. I wish I could find a calcium supplement that wouldn't bother my stomach (I've tried all sorts of liquid versions) but to no avail. This is the healthiest I've felt for probably my entire lifetime. I make almost all of my own baked goods - and know what works as substitutes for many ingredients (i.e., for brown sugar I use Lyle's Golden Syrup). I make some pretty mean gf white sandwich bread too :)
I wish everyone who reads this the best of health and don't hesistate to ask questions!!
Jennifer

Please Log in or Create an account to join the conversation.

More
7 years 3 months ago #206 by elliotdesigns
Replied by elliotdesigns on topic low-fructose diet for 1 year
Hi Jennifer. I have 3 children all with very severe food allergies and gluten intolerance. I just found out that my 12 year old is also fructose intolerant. I am hoping that explains the last reason for his chronic head aches, stomach aches, ...............I am waiting to see the dietician in another week and a half...to make sure we are dealing with the diet correctly....I can't beleive the list my doctor sent to me in comparison to what I find on the internet. Oh my goodness...I'm not sure what I can feed my kid now. Where should I start?

Please Log in or Create an account to join the conversation.

More
7 years 3 months ago #210 by mountainraine
Replied by mountainraine on topic low-fructose diet for 1 year
Thank you for taking the time to make your post. I feel like I am at ground zero right now and entering into the twilight zone, so your post was like a beacon of light and gave me hope that a diet change is do able and wil be worth the effort! I have battled with repeat UTI for 25 years, can't tell you the frustration I've had with that! but through that realized that certain foods caused me problems and have tried to make diet changes to control it. I was mis diagnosed with Fibromyalgia years ago and recently thought I had IBS and my issues started to dictate my life to me so headed to the dr.who had the wisdom to insist on a colonoscopy first with a specialist in Chronic Digestive Disorders. After colonoscopy and discussion he wants me to come back for more testing which will include the Hydrogen Breath Test to see if we can pinpoint what my specific food intolerances are but he feels Fructose Malabsorption will be in there and based on how I already know how my body reacts to certain foods and sugars I won't be surprised if I test positive for this and maybe the Lactose and Yeast. We'll see. Should be most interesting and hopefully life changing in a positive way. Right now I'm a little depressed at the thought of giving up so many foods I crave like a junkie (mostly anything sweet). I find I'm afraid right now to eat anything but the blandest of foods. Probably a good thing. I took your advice and ordered a copy of Carol Fenster's book, 1,000 Gluten free recepies as I love to bake and even if Gluten isn't an issue seems like a good place to start as I search for digestive friendly recepies. Thank you for sharing your experiences/hard earned wisdom. Raine
The following user(s) said Thank You: jlrohler

Please Log in or Create an account to join the conversation.

  • jlrohler
  • jlrohler's Avatar Topic Author
  • Offline
  • Fresh Boarder
  • Fresh Boarder
More
7 years 3 months ago #212 by jlrohler
Replied by jlrohler on topic low-fructose diet for 1 year

elliotdesigns wrote: Hi Jennifer. I have 3 children all with very severe food allergies and gluten intolerance. I just found out that my 12 year old is also fructose intolerant. I am hoping that explains the last reason for his chronic head aches, stomach aches, ...............I am waiting to see the dietician in another week and a half...to make sure we are dealing with the diet correctly....I can't beleive the list my doctor sent to me in comparison to what I find on the internet. Oh my goodness...I'm not sure what I can feed my kid now. Where should I start?


I hope your visit with your dietician went smoothly and helped iron out a course of action to determine appropriate foods to begin with. You have to eat a very restrictive diet at first in order to "clear the field" for introducing foods that could possibly trigger symptoms. Unfortunately, there's no way around that one! But it's so worth it because then you have the peace of mind knowing what foods are safe and what foods are triggers.
To be entirely honest, I like my restrictive diet. It's very easy for me to maintain my weight at a very healthy level - I can easily say no to foods I'm not supposed to have (including desserts) because the pain isn't worth it! Best wishes for continued health! Jennifer
The following user(s) said Thank You: mountainraine

Please Log in or Create an account to join the conversation.

  • jlrohler
  • jlrohler's Avatar Topic Author
  • Offline
  • Fresh Boarder
  • Fresh Boarder
More
7 years 3 months ago - 7 years 3 months ago #213 by jlrohler
Replied by jlrohler on topic low-fructose diet for 1 year

mountainraine wrote: I took your advice and ordered a copy of Carol Fenster's book, 1,000 Gluten free recepies as I love to bake and even if Gluten isn't an issue seems like a good place to start as I search for digestive friendly recepies. Thank you for sharing your experiences/hard earned wisdom. Raine


A great online site for ordering special flours and ingredients is iHerb.com. I've had nothing but wonderful experiences with this company. They ship internationally too I believe. Once when a flour I order arrived opened in a box, iHerb refunded me the price of the flour in addiiton to sending me a new bag right away. I usually order 3 or 4 bags at a time (esp. the Sorghum) and store unopened bags in the freezer). I order my vitamins from iHerb too :)
A note of warning about Carol's cookbook - the recipes are only intended for gluten-free; I have to modify them for fructose intolerance. I just cut out ingredients I can't have or substitute. Lyles Golden Syrup is what I substitute for honey & brown sugar in recipes and so far it's worked great. I substitute it in equal amounts. I highly recommend using Carol's all-purpose flour blend of sorghum, tapioca, and potato starch as mentioned in her cookbook. Happy Baking!!
Jennifer
Last edit: 7 years 3 months ago by jlrohler. Reason: misspellings

Please Log in or Create an account to join the conversation.

More
7 years 3 months ago #215 by mountainraine
Replied by mountainraine on topic low-fructose diet for 1 year
I checked out iherbs website and placed an order for some flours and vanilla that i thought might come in handy once i receive my cookbook, going from depressed to hopeful and excited and quick order. thanks to your helpful advice! I couldn't locate the lyles Golden Syrup there, any ideas on where to find? Thanks again, Raine.

P.S. I feel like someone has tossed me a life line here on the computer through you. I know sometimes in life we wonder if our lives matter, have our lives enriched anothers, have I made a difference and so on, just wanted you to know you're caring has made a difference in my life.
Raine
The following user(s) said Thank You: jlrohler

Please Log in or Create an account to join the conversation.

Time to create page: 0.460 seconds

login

Register
Remember Me
Forgot username  Forgot password

Advertising

Advertising

Certifications & Quality

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

quality criteria logoThe information provided is created in compliance with a self-imposed quality management procedure

Disclaimer

The information provided on the Food Intolerance Network website is no substitute for a visit to a registered dietician, nutritionist or a doctor. The information that you will find here may not be used as a substitute for professional advice and treatment by a medical professional or approved and registered dieticians. The content of the Food Intolerance Network website may not be used as a basis or means for any form of self-diagnosis.

Go to top